Unlike ResearchKit, the platform for scientists and clinicians conducting research through Apple devices, CareKit is designed for individuals to collect and share data surrounding care.
Start, a mental health app for people with depression, is among the first apps launching with CareKit. Thomas Goetz, cofounder of Start developerIodine, says that CareKit will make it easier for patients to track their advance with antidepressants and share that data with their doctors.
Apple’s new open-source framework contains four different modules: Care Card, for documenting medication or physical therapy; Symptom and Measurement tracker for monitoring ache, fatigue, infection, or other issues; Insight Dashboard that displays how well therapies are running; and Connect, a module to simplify sharing data with family and practitioners. CareKit won’t be available until next month, but Start is the first mental health partner, and will be rolling out a CareKit-enabled app when the platform is released.
Depression is the most common mental illness in the U.S ., affecting more than 26 percentage of adults, the CDC reports. And yet, the inherent trial and error of prescribing drugs or redress that actually work is a big problem for providers, patients, and insurance companies. With Start, patients can track their drug, side-effects, and emotions in real-time to better understand how their drug is functioning and determine, along with their physician, whether or not to continue the course of treatment.
Launched six months ago, Start is already providing a comprehensive tool to manage day-to-day health. To get started with the app, users first take a survey called the PHQ-9, a clinically-validated mental health questionnaire used to screen, measure, and diagnose the severity of depression. Patients receive a depression rating and then check-in sporadically in the app to share their the successes and whether or not they feel better. Another PHQ-9 is administered every couple weeks, and patients receive a report that provides insight on their progress.
CareKit will provide a new architecture for collecting and sharing this data with doctors.
“The net outcome is really rich data that can help a lot of people understand that theyre getting better and cut through the cloud of depression and not knowing if the medication is working or not. What weve discovered is its something that people want to share with their doctors and doctors want to get, ” Goetz said in an interview with the Daily Dot. “Thats some of the stuff that CareKit is allowing us to do; building that handoff of the information even easier and more effective.”
With the CareKit framework in Start, patients are given an intuitive interface that enables them to send data to their practitioner, though the doctor must be willing to accept it. Goetz used to say the company is working on building sure the data is collected , not just as an email, but connected to electronic health records automatically.
“You only want to give people info when they can act on it and when there is meaning to it.”
Doctors who are Start customers have a dashboard with patient insights, and though the app is free for patients, clinical surroundings will have a premium version of the app to track and store data.
Like fitness apps that identify patterns in exert or wellness through user data, Start also uses anonymized data to track patterns in mental health and predict what treatments will be successful or not.
With thousands of people sharing data with Start, that process is already ongoing. For instance, people who report headaches when they begin a treatment have a lower opportunity of having a successful therapy after six weeks, Goetz said.
With CareKit, Apple is embedding itself even deeper into our personal lives, collecting and storing data covering our most basic and private issues. The kind of private information you are able to merely share knowing it’s safe and encrypted, and CareKit is yet another argument showing why privacy and encryption on our devices is so fundamental.
No longer are smartphones simply scrapbooks and messaging facilitators, but they safeguard information that could literally mean life or death. In the ongoing encryption debate, and requests for backdoors that would let the government and potentially hackers into our devices, the vital personal data contained within our health apps adds another layer of complexity that perfectly must be accounted for.
Ultimately, Apple’s latest healthcare framework is something of a middle ground between ResearchKit and HealthKit, used for building fitness and wellness apps. CareKit apps way data, while also devoting patients tools and resources to better understand and share their health and wellness.
“One of the things that CareKit is doing is creating a way of coordinating self-reported information into meaningful divisions, ” Goetz said. “You only want to give people information when they can act on it and when there is meaning to it.”
Photo via Wikipedia( CC by 3.0) | Remix by Max Fleishman